Intracraniel hypertension

Forum rules
The' GENERAL CHAT- silly posts' thread will be locked monthly. The old thread will remain for access for a month and then be deleted. This is to remove information from storage that is old. If you need information from the locked thread please retrieve it before it is deleted.

Please be inclusive of everyone- this is an area for all members to chat and feel part of the community.

1) No trolling or posting topics with the intention of causing upset.
2) No swearing.
3) No abusive or derogatory comments about any group of people based on their look, beliefs, morals, religion, sexual orientation, gender, race, ethnicity , profession or country will be tolerated.
4) Keep 'angst' style posts to a minimum.
5) Keep topics PG13 - we don't have to be all nice and sugary, but nothing too graphic please.
6) *If you are asking where to buy something or asking where to find an item please post in Want To Buy- not here. This may also apply if you are looking for product information that will lead to indirect promotion.

(Remember you need to abide by the 50 posts/30 day rule in Want To Buy)
Post Reply
User avatar
Librarynerd
Posts: 754
Joined: Sun May 30, 2010 9:22 am
Location: Olympia, WA

Intracraniel hypertension

Post by Librarynerd » Fri Aug 12, 2011 2:17 am

Anybody else suffer with this annoying disorder? How are you managing it?
http://www.etsy.com/shop/jeanween23

XXXX I used to be disgusted. Now I try to be amused. XXXX

User avatar
VixenSingsBlack
Posts: 3148
Joined: Thu Aug 21, 2008 10:13 pm
Location: NOLA
Contact:

Re: Intracraniel hypertension

Post by VixenSingsBlack » Fri Aug 12, 2011 2:57 am

Librarynerd wrote:Anybody else suffer with this annoying disorder? How are you managing it?
Can you link to a good, reliable explanation please? Never heard of this.

User avatar
Librarynerd
Posts: 754
Joined: Sun May 30, 2010 9:22 am
Location: Olympia, WA

Re: Intracraniel hypertension

Post by Librarynerd » Fri Aug 12, 2011 3:48 am

This is a good overview. http://en.wikipedia.org/wiki/Idiopathic ... pertension

I had my first bout with this about 6 yrs ago, been in remission for the last 3. Now it is back:(
http://www.etsy.com/shop/jeanween23

XXXX I used to be disgusted. Now I try to be amused. XXXX

User avatar
halocaustic
Posts: 1081
Joined: Thu Aug 21, 2008 9:16 am
Location: Troon, Scotland
Contact:

Re: Intracraniel hypertension

Post by halocaustic » Fri Aug 12, 2011 7:28 am

Is it caused by an existing disorder or is it of unkown cause?
I specialised in Neurosurgery and worked in the ICU for many years. A lot of patients with ICH ended up having surgery to put in a ventricularperitoneal shunt to constantly drain the fluid. Obviously with this, there is infection risk and if the shunt blocks it can make you very ill indeed.

We would also get patients in for therapeutic lumbar puncture too, where we would drain off some of the cerebrospinal fluid to reduce the intracranial pressure. It's unpleasant, but very effective and much better than having surgery especailly if you only get bouts every now and again.
http://www.halo-wear.co.uk
Hair extensions & customised t-shirts

User avatar
rivetlicker_
Posts: 4561
Joined: Thu Aug 21, 2008 4:54 am
Location: Sydney AU

Re: Intracraniel hypertension

Post by rivetlicker_ » Fri Aug 12, 2011 3:14 pm

Sorry hun, I have hypotension. Sometimes I black out in the shower... :(

My blood pressure is so low sometimes...

Image

User avatar
VixenSingsBlack
Posts: 3148
Joined: Thu Aug 21, 2008 10:13 pm
Location: NOLA
Contact:

Re: Intracraniel hypertension

Post by VixenSingsBlack » Fri Aug 12, 2011 4:47 pm

rivetlicker_ wrote:Sorry hun, I have hypotension. Sometimes I black out in the shower... :(
89/64 That's almost what my blood pressure was the other day! Mine was like 92/67 :) Blood pressure buddies.

User avatar
Librarynerd
Posts: 754
Joined: Sun May 30, 2010 9:22 am
Location: Olympia, WA

Re: Intracraniel hypertension

Post by Librarynerd » Fri Aug 12, 2011 8:11 pm

halocaustic wrote:Is it caused by an existing disorder or is it of unkown cause?
I specialised in Neurosurgery and worked in the ICU for many years. A lot of patients with ICH ended up having surgery to put in a ventricularperitoneal shunt to constantly drain the fluid. Obviously with this, there is infection risk and if the shunt blocks it can make you very ill indeed.

We would also get patients in for therapeutic lumbar puncture too, where we would drain off some of the cerebrospinal fluid to reduce the intracranial pressure. It's unpleasant, but very effective and much better than having surgery especailly if you only get bouts every now and again.
Unknown cause. I've had 4 lumbar punctures( not as bad as they sound) in the last 6 yrs and 2 MRI's to rule out a tumor or meningitis/encephalitis. The therapeutic lumbar puncture does work but only for a few days, then your body just makes more fluid.
dON'T RED THIS NEXT BIT IF YOU ARE EASILY GROSSED OUT
I got my neurologist to give me a vial of my cerebrospinal fluid, most folks never get to see this unless they have a horrific head injury. Looks and has the viscosity as water. I tasted it, tastes like tears:)

Mostly I'm wondering if anyone has tips for dealing with the chronic headaches and nausea. Tylenol(pracetemal) and advil do nothing for me and I'd like to avoid opiates if possible.
http://www.etsy.com/shop/jeanween23

XXXX I used to be disgusted. Now I try to be amused. XXXX

User avatar
VixenSingsBlack
Posts: 3148
Joined: Thu Aug 21, 2008 10:13 pm
Location: NOLA
Contact:

Re: Intracraniel hypertension

Post by VixenSingsBlack » Sat Aug 13, 2011 3:18 am

Librarynerd wrote:
halocaustic wrote:Is it caused by an existing disorder or is it of unkown cause?
I specialised in Neurosurgery and worked in the ICU for many years. A lot of patients with ICH ended up having surgery to put in a ventricularperitoneal shunt to constantly drain the fluid. Obviously with this, there is infection risk and if the shunt blocks it can make you very ill indeed.

We would also get patients in for therapeutic lumbar puncture too, where we would drain off some of the cerebrospinal fluid to reduce the intracranial pressure. It's unpleasant, but very effective and much better than having surgery especailly if you only get bouts every now and again.
Unknown cause. I've had 4 lumbar punctures( not as bad as they sound) in the last 6 yrs and 2 MRI's to rule out a tumor or meningitis/encephalitis. The therapeutic lumbar puncture does work but only for a few days, then your body just makes more fluid.
dON'T RED THIS NEXT BIT IF YOU ARE EASILY GROSSED OUT
I got my neurologist to give me a vial of my cerebrospinal fluid, most folks never get to see this unless they have a horrific head injury. Looks and has the viscosity as water. I tasted it, tastes like tears:)

Mostly I'm wondering if anyone has tips for dealing with the chronic headaches and nausea. Tylenol(pracetemal) and advil do nothing for me and I'd like to avoid opiates if possible.
Have you tried ice to numb the pain away? I know it's kind of crazy, but it works for my migraines.

User avatar
Librarynerd
Posts: 754
Joined: Sun May 30, 2010 9:22 am
Location: Olympia, WA

Re: Intracraniel hypertension

Post by Librarynerd » Sat Aug 13, 2011 5:20 am

I'll try it! can't hurt:)
http://www.etsy.com/shop/jeanween23

XXXX I used to be disgusted. Now I try to be amused. XXXX

User avatar
KelsieStars
Posts: 705
Joined: Thu Aug 21, 2008 7:05 am
Location: Midlands

Re: Intracraniel hypertension

Post by KelsieStars » Sat Aug 13, 2011 1:47 pm

Urgh - lumbar punctures. I have also had 4 and they were horrible (3 attempts in 3 days the first time I was admitted to hospital with headaches - the second admission they managed the pucture straight away. Not fun). Not an experience I want to go through again any time soon!

Back on topic: I don't have Intracraniel hypertension, but I do have cluster headaches (and another suspected vaso-vascular disorder) and I take pizotifen nightly to help with the chronic daily headaches. When a cluster headache kicks in I take sumotriptin and I find it really helps.

The pizotifen doesn't stop the headaches completely, but between that & tramadol it certainly allows me to function normally. If you want to avoid opiates then tramadol wouldn't be for you - but pizotifen isn't an opiate, perhaps that would be one to try?

Aside from that, I find essential oils really help to take the edge of the headaches. I use a relaxing one from Neal's Yard (http://www.nealsyardremedies.com/Remedi ... Relaxation). When I have some spare cash I want to try craniosacral therapy (http://www.nealsyardremedies.com/craniosacral-therapy & http://www.nealsyardremedies.com/cranial-osteopathy). It is my aim to be as free from drugs as I can be in the future - so am really looking into natural remedies.

Chronic headaches are horrible - you certainly have my sympathy

Post Reply

Return to “Noise - General Chatter”

Who is online

Users browsing this forum: No registered users and 6 guests